Running TodayHeavyn GinEnglish 10, Period 10Dunmore High SchoolLiving

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Last updated: August 31, 2019

Running Head: LIVING WITH HEMOPHILIA TODAYLiving with Hemophilia TodayHeavyn GinEnglish 10, Period 10Dunmore High SchoolLiving with Hemophilia TodaySuppose someone with hemophilia falls while riding their bike and a bleed begins to form, how would a doctor deal with a case like this today? Hemophilia is a rare bleeding disorder that affects men and women all over the world. It is a bleeding disorder that causes a person not to clot due to the lack of a factor in their body, so they may bleed longer externally or internally and the severity of the bleed depends on the condition of the person. This disorder has been researched and studied by many scientists over many years, this research has enabled people with the bleeding disorder to better live with the condition and and treat certain situations accordingly and differently than they would before they had learned new ways that work better than others. It also has become easier to handle and take care of than it was many years ago because doctors are continuously making new discoveries that will eventually lead to a cure for hemophilia.

Although many people during the 70’s and 80’s did not understand hemophilia, there have been huge advances in the medical field that have helped doctors and patients with hemophilia to better comprehend what hemophilia is, treat the condition and live with it today. There are mainly 3 types of hemophilia, hemophilia A, B, and C. For each of these types there is a different severity for complications some complications may be bruises, joint bleeds, muscle bleeds, or bleeds in places where it isn’t easy to manage, for example mouths. Written in one article it says “Depending on the severity of the underlying bleeding disorder, bleeding episodes may be frequent too rare or only occur with surgery or other procedures”(Living With Hemophilia, 2016). Each person’s condition affects them differently and because of this some people may need to take extra precautions to keep safe and prevent injuries others may need to take extra doses of medication frequently and others may only need to for serious injuries or surgery. Other things that may complicate the condition more as it is is an inhibitor an inhibitor is a complication when someone’s body creates an antibody that rejects the clotting factor and if someone’s body rejects the factor it won’t help the blood clot. It is explained in one article stating ” In some patients with hemophilia, the immune system produces an antibody that inhibits the action of replacement blood products and prevents clot formation.

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This antibody is known as an inhibitor. The presence of an inhibitor makes the treatment of bleeding episodes more difficult”(Living With Hemophilia, 2016). Inhibitors are not very common but once a hemophiliac is diagnosed with an inhibitor it is hard to get rid of. Before people understood hemophilia around the 80’s the main treatment for hemophiliacs were blood transfusions or clotting factor medicines, these treatments contain plasma and although this works doctors didn’t know that the donated blood was contaminated with the HIV virus so people with hemophilia were associated with having HIV and AIDS, this caused them more problems socially and medically. One article stated,  “In 1982, the Centers for Disease Control (CDC) reported the first case of HIV/AIDS among people with #hemophilia, and concern began to grow that the blood supply was tainted”(Schemeck, 2014). It wasn’t until the 1980’s people were suspecting that the virus was transmitted from the blood and departments began controlling and killing the HIV virus within the blood clotting factor.

Hemophilia has not been cured to this date but there is a wide variety of different treatments someone today could use. This article stated  “Treatment may involve slow injection of medicine called desmopressin (DDAVP) by the doctor into one of the veins…People who have moderate to severe hemophilia A or B may need to have an infusion of clotting factor taken from donated human blood…

or doctor may give infusions of clotting factor to avoid bleeding”(Learning About Hemophilia, 2011). As said before hemophilia affects each person differently so different treatments are necessary for their care. “Individuals who have hemophilia A and B are living much longer and with less disability than they did 30 years ago. This is because of the use of the intravenous infusion of factor VIII concentrate, home infusion, prophylactic treatment…”(Learning About Hemophilia, 2011). As said in that article people are living better and longer from new treatments and these were all created to help stop bleeding in hemophiliacs and to make it easier for patients to get medication.Before there were new medications people had to be given the medication at hospitals that costed time and money and during those time those people didn’t really have anyone to talk to about their problems but now there are chapter where families get together and receive comfort by talking to one another about their personal challenges they have faced. One article read, “There  are  support  groups  run  through  treatment  centers  and  chapters  where  people  with  bleeding  disorders  can  talk  about  the  issues  they  confront  in  there  daily  lives”(Living With Hemophilia, 2016) .

One thing that has changed about hemophilia since the 80s is the price it has increased a lot but one thing that hasn’t changed is that many people all over the world are not able to get medication still because it is so expensive. Thanks to Obama removing insurance caps more people in the U.S.

are able to receive the medicine they need. This article stated ” Today, there are about 141 federally-funded treatment centers and programs across the country. The concept of comprehensive care is to treat the whole person and the family…”(Living With Hemophilia, 2016). Nowadays people have more help and care, one place where people can go is treatment centers where they specialize in helping people with a certain disorder such as hemophilia. There are many treatment centers all over the U.

S. that help to come up with plans about a patient’s treatment and deal with issues concerning the disorder. In one article it stated “The hematologists, nurses, psychosocial professionals and physical therapists not only help consumers with their medical care issues, but also lend tremendous emotional support. Many people with bleeding disorders use the resources of their hemophilia Treatment Center (HTC) for many years because the staff understands their unique needs”(Living With Hemophilia, 2016).

In conclusion, there is many things that have changed since the 80’s one thing is the understanding and knowledge of hemophilia because people now have more options and support that help people live a normal life. With new medications going through clinical trials there is hope for a cure in the future but nonetheless medications today that allow someone with hemophilia to do normal things such as riding a bike and not having to worry as much if they fell. And although there are many complications that can add on it’s only a matter of time until those complications are resolved too. ReferencesLiving with Hemophilia. (2016). Retrieved December 5, 2017, from http://www.cascadefoundationaz.

org/living-with-hemophilia.htmlSchemeck, H. M. (2014, March 17). 1980’s: Hemophilia, HIV/AIDS, and Hepatitis C. Retrieved December 8, 2017, from http://www.hemophiliafed.

org/news-stories/2014/03/1980s-hemophilia-hivaids-hp    atitis-c/Learning About Hemophilia. (2011, September 27). Retrieved December 8, 2017, from https://www.genome.gov/20019697/learning-about-hemophilia/

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